6. How do we raise awareness of rare conditions

This final episode looks at the lack of public awareness about rare bone marrow conditions and the challenges in getting people to understand them. We highlight the work of the collective charities to raise awareness. 

Conditions mentioned in this episode: Fanconi Anaemia, Dyskeratosis Congenita, Paroxysmal Nocturnal Haemoglobinuria

Further Reading:

super-rare.org
theaat.org.uk/emotional-wellbeing-support
pnhuk.org
dcaction.org
sdsuk.org